The RLS Forum - Australia

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The RLS Forum - Australia

Postby WebAdmin@001 » Fri Oct 28, 2005 6:02 pm

Please let RLS Australia know of certain topics that you would be interested in to discuss with your fellow RLS'ers!

We would very glad to hear from you. We would be ecstatic if you could pass on this new information to anybody that needs encouragement, hope and support with their RLS.

We look forward to our future dicussions!

Kind regards,
RLS Australia
WebAdmin@001
 

Thank you

Postby Sophia » Wed Nov 09, 2005 8:06 am

Dear RLS Australia,

I am very excited about this new Forum that you have included in the website.
If I am having some trouble with my sleep, I can log on and share my RLS experiences and feelings with others. Hopefully that can help them and they can help me in return.

Cheers
Sophia
 
Posts: 2
Joined: Wed Nov 09, 2005 8:03 am
Location: sydney and southern highlands

Thats a start

Postby Captainharsh » Sun Mar 29, 2009 9:34 pm

Hi all,
Till today, was not even aware that my problem had a name. Suffered for a long time with this. Now finally glad that I can talk about it. :D . Hope I can get some help here.
Just to add that whenever I could not sleep due to this problem, having a banana at night always helped. Can anyone throw some light on this as to why?
Take care
Captainharsh
 
Posts: 1
Joined: Sun Mar 29, 2009 9:24 pm
Location: Melbourne

Postby pandanusblue » Wed Dec 23, 2009 8:42 am

vitamin B content perhaps?
pandanusblue
 
Posts: 8
Joined: Mon Dec 21, 2009 9:38 am

Postby velvetsiren » Tue Dec 29, 2009 10:26 am

hi i am new here, my rls has gotten to the point where i am in need of attention, as my quality of life is getting beyond releif, so i hope i can find some useful info here. i will go and read yoru website now thank you for your venue to discuss this horrible situation
velvetsiren
 
Posts: 4
Joined: Tue Dec 29, 2009 10:23 am

Postby WebAdmin@001 » Tue Dec 29, 2009 6:19 pm

Hello Velvet,
Perhaps once you've read some of the other messasges and topics if you have more specific questions please ask as there is nearly always someone on hand to reply.

there is a lot of information on the message forum but I know it takes ages to read through it.

Hope to hear from you again,
Roslyn
WebAdmin@001
 

Postby velvetsiren » Sat Jan 02, 2010 2:39 pm

thanks Roslyn.

i have had rls for years it seemed to come and go but the last few months has been every night at around 8 - 10 it kicks in a then i wont get to sleep until 3 or so in the morning, or until i pass out from over fatigue, i have explored many options, being a novice herbalist i have created many formulas in hope to try and combat the rls. some have worked other times it doesnt, it just isnt consistent. some herbs i have found to be of use are
ci shi - magnitite
ziziphus seeds
he huan pi and he huan hua - albizzia bark and flowers
long gu - dragon bone - fossilised reptile bones
rehmannia
fu shen - poria fungas
cinnabar - in only small amounts withint a formula - can be toxic if high and regular doses
some others i cant think of of the top of my head, sometimes these herbs and in combinations work really well at calming the spirit and mind, as well as body, but it isnt always consistent like i said
the explorations will continue
but i have a referal to go to the neurologist whch i will do when they get back from holidays, in the mean time the doctor prescribed some panadeine forte which doesnt really help that much, but it does provide some kind of relaxation.
the doctor didnt want to provide benzo's due to addiction possibilites but i did question if opiates didnt run the same risks he seemed to think it was a better option due to half life of the said drug, i dont know about that, but still i welcome something as it is pretty awful which i am sure you all know

thanks
i guess i need to wait and speak with the specialist, i hope they can offer something to help, i dont like the idea of drugs all the time, but i also hate rls every night. its torture
velvetsiren
 
Posts: 4
Joined: Tue Dec 29, 2009 10:23 am

Postby WebAdmin@001 » Sat Jan 02, 2010 3:41 pm

Hello Velvet,
I can't comment on the herbs etc you mentioned, way out of my league I'm afraid. Seeing a neurologist is a good move.
Before I started on the 'heavier' drugs for rls (Sifrol which is the wonder drug of the decade) I took a muscle relaxant tablet called Antenex which was quite helpful for a long while but eventually my symptoms got so bad i needed something else.

I also tried many natural remedies over the years - I can't remember the names of them all now but the only one I feel which has helped at all is magnesium tablets which I still take.
None of the others really worked. I also tried acupuncture for about 6 months. I thought it was helping but after I fainted during this treatment for the 2nd time the dr refused to do it any more.

Hope you dont have to wait too long to see the neurologist and that you get some answers.

Roslyn
WebAdmin@001
 

Postby velvetsiren » Sun Jan 03, 2010 11:50 pm

thank you
i need to get some magnesium tablets, however some of these herbs contain magnesium within them

i havent given up on the herbs yet just need to find the right combination for me, even if it compliments drugs. thank you
velvetsiren
 
Posts: 4
Joined: Tue Dec 29, 2009 10:23 am

Postby zaradatha » Thu Sep 16, 2010 5:44 pm

I have joined this forum on behalf of my seven year old son. Recently he was diagnosed with RLS and is currently on his second bottle of ferro liquid under the guidance of his paediatrician. His ferritin levels were extremely low despite a diet rich in iron. He will be retested after the third bottle to see whether his levels have increased which hopefully improve his condition.
In the meantime his quality of life is not great- difficulty falling asleep, waking during the night and extreme tiredness throughout the day. To his credit however he puts up with the symptoms despite extreme discomfort whilst sitting down at school to do his work. He has a very understanding teacher who allows him to kneel or stand and even leave the room to briefly run around the playground-the only way he gets relief from the crawlies. I don't know how he gets his work done but he does- so mentally strong!
As it appears this condition can be hereditary, I can only guess that perhaps my late father experienced such symptoms in his mid 60's. He was treated for a skin disorder as he often mentioned how he had an internal itch. Perhaps it was RLS. Neither my husband or I have it nor other relatives. Is it common among children so young and can we assume his symptoms will worsen as he ages? Does anyone have a young child with RLS who has tried other options? Many thanks
zaradatha
 
Posts: 6
Joined: Thu Sep 16, 2010 5:17 pm

Postby WebAdmin@001 » Thu Sep 16, 2010 6:36 pm

Hello and welcome to our forum.
I feel for you with a child so young being diagnosed with RLS and can only imagine what you must be going through as family. There are a couple of members who are in a similar situation with children suffering - have you read any of the other top threads?
I'll see if I can contact the others who should be able to give you some hints.

Regards, Roslyn
WebAdmin@001
 

Postby zaradatha » Mon Sep 20, 2010 1:31 pm

zaradatha wrote:I have joined this forum on behalf of my seven year old son. Recently he was diagnosed with RLS and is currently on his second bottle of ferro liquid under the guidance of his paediatrician. His ferritin levels were extremely low despite a diet rich in iron. He will be retested after the third bottle to see whether his levels have increased which hopefully improve his condition.
In the meantime his quality of life is not great- difficulty falling asleep, waking during the night and extreme tiredness throughout the day. To his credit however he puts up with the symptoms despite extreme discomfort whilst sitting down at school to do his work. He has a very understanding teacher who allows him to kneel or stand and even leave the room to briefly run around the playground-the only way he gets relief from the crawlies. I don't know how he gets his work done but he does- so mentally strong!
As it appears this condition can be hereditary, I can only guess that perhaps my late father experienced such symptoms in his mid 60's. He was treated for a skin disorder as he often mentioned how he had an internal itch. Perhaps it was RLS. Neither my husband or I have it nor other relatives. Is it common among children so young and can we assume his symptoms will worsen as he ages? Does anyone have a young child with RLS who has tried other options? Many thanks
zaradatha
 
Posts: 6
Joined: Thu Sep 16, 2010 5:17 pm

Postby zaradatha » Mon Sep 20, 2010 1:43 pm

zaradatha wrote:I have joined this forum on behalf of my seven year old son. Recently he was diagnosed with RLS and is currently on his second bottle of ferro liquid under the guidance of his paediatrician. His ferritin levels were extremely low despite a diet rich in iron. He will be retested after the third bottle to see whether his levels have increased which hopefully improve his condition.
In the meantime his quality of life is not great- difficulty falling asleep, waking during the night and extreme tiredness throughout the day. To his credit however he puts up with the symptoms despite extreme discomfort whilst sitting down at school to do his work. He has a very understanding teacher who allows him to kneel or stand and even leave the room to briefly run around the playground-the only way he gets relief from the crawlies. I don't know how he gets his work done but he does- so mentally strong!
As it appears this condition can be hereditary, I can only guess that perhaps my late father experienced such symptoms in his mid 60's. He was treated for a skin disorder as he often mentioned how he had an internal itch. Perhaps it was RLS. Neither my husband or I have it nor other relatives. Is it common among children so young and can we assume his symptoms will worsen as he ages? Does anyone have a young child with RLS who has tried other options? Many thanks
zaradatha
 
Posts: 6
Joined: Thu Sep 16, 2010 5:17 pm

role of magnesium

Postby zaradatha » Sun Sep 26, 2010 9:35 pm

I was recommended recently by my local health food store a product called Schuessler Tissue Salts cream ( a muscle and nerve tension relaxant). The owner has a three year old grandson who has RLS and she applies the cream at night to his legs. Although his 'crawlies' have not completely gone his nights are noticeably better in that he does not wake as often. I applied the cream on my son before bed two nights ago and he did not experience intense pain and stayed in his bed. He said his legs sweated profusely but the crawlies were not as bad. This was the first night in years that he had a relatively good sleep. I too applied the cream and interestingly my legs didn't sweat at all. Perhaps my magnesium levels are not in deficit. The following night I didn't put the cream on and his symptoms were as usual - trouble falling asleep then continual sleep interruption. Put the cream on again the following night resulted in a better quality sleep. I will now have my son's magnesium levels tested and see whether a supplement will assist in treating his RLS. I hope this offers others especially young children some much needed help.
zaradatha
 
Posts: 6
Joined: Thu Sep 16, 2010 5:17 pm

Postby WebAdmin@001 » Sun Sep 26, 2010 9:57 pm

Hello Zara,
What interesting information and there's even more info through Google. It seems the tissue salts are available in a tablet and spray too. Well worth people reading about these products and then making a decision about trying. I can see that the cream or even the spray would be good for children.
Thank you for posting this info, every little bit helps.

Roslyn
WebAdmin@001
 

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